Waiting the rest of your life for help

 
Sunday, December 02, 2007  The Oregonian

 Margie Boulé

Y ou have a good job, you're buying your own home, you've accumulated a life savings for retirement or to pay for the kids' college educations.

And then you get sick. Really sick.

So sick you can't work anymore. Maybe you have a terminal diagnosis. Maybe, like a man I wrote about two weeks ago, you need a heart transplant and can barely climb a flight of stairs.

You apply for Social Security disability. It's not a handout; you're asking for your own money -- money you've been contributing with every paycheck you received, through the FICA tax that's been withheld.

And you get denied.

What? You're too sick to work, and you're denied disability payments?

That's what happens to 69.6 percent of the people in Oregon who apply for Social Security disability. They're denied the first time they apply.

So they make a "reconsideration request." And in Oregon, 90.3 percent of those people are denied.

The next step is to ask for a hearing. And the average wait in Portland for a Social Security disability hearing?

It's 668 days.

That's right, if you live in the Portland area and are legitimately too sick to work, you could wait almost two years for a hearing to persuade a judge you're actually sick enough to receive the money you've been giving the government all these years, to cover you in case of disability.

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Daniel Bernath
Attorney at Law

"Don't Give Up!  I will fight for you"~Practice limited to obtaining SSA benefits for disabled people throughout the United States and federal administrative law  "Just give me a call...leave the rest to me."

   

"It doesn't matter if you have ovarian cancer, HIV/AIDS" or need a heart transplant, says Tim M. Tim is an AIDS patient who went through a two-year process of trying to get SSI disability payments -- twice -- before receiving benefits. Tim has asked that his last name not be printed because of societal prejudice against AIDS patients.

"Social Security is like peeling back an onion," he says. "At any point in the process, from start to finish, you see layer after layer after layer of bureaucracy."

Tim finally was able to secure benefits with the help of a local attorney, Sarah . Sarah has assisted HIV/AIDS patients with Social Security disability requests for 25 years, "and I've never seen it as draconian as it is now," she says. "The bottom line is people are waiting two to three years for a hearing. My clients keep asking, 'What do they expect people to do?' I wish I had an answer."

Her clients are not the HIV/AIDS patients on medication who are doing well. They are "very, very sick people," she says.

This is not a story about evil civil servants working for evil managers in an evil governmental agency.

It's a story about what happens when Social Security got its funding cut for more than a decade, as its workload doubled.

The people working at the local Social Security offices, both attorneys and patients agree, "are just doing the best they can with diminishing resources and increasing applications," Sarah says. " 'Heroic' is a good word" for what local Social Security workers are trying to do.

"I don't think they're bad people," Tim says. "My personal belief is they're overwhelmed."

That doesn't mean the waits are justified or the consequences aren't tragic.

In a single year, says Portland attorney Richard , 15 of his clients died waiting for a hearing after their applications for SSI disability had been twice rejected.

In other words, they were sick enough to die but not sick enough to get SSI.

Because they can't work, many sick people's lives are devastated while they wait for their appeal hearings. "I've had clients so sick they can't work, so they live in their cars, their trucks, old RVs," Richard says.

"Many people become homeless during the wait," says Mellani Calvin. Mellani assists clients of Central City Concern with the application process. "They exhaust all their resources and end up moving in with relatives or couch-surfing at friends', living on the street or moving into shelters."

Tim has gone through the process. "You're ill, your medications cost $20,000 a year, you're not able to work. Slowly you start to sell off things that are valuable to generate income. Then you lose housing. I lived in my truck with my dog for a year and a half. That was when I met Sarah. The first time I applied for disability I did it on my own, which was a big mistake. Two years wasted."

"I have one gal, over 60, who became disabled," Richard says. "She's on the streets. Here's a woman who's been middle class all her life. Now she's forced to be out there where it is frighteningly dangerous, to a woman in particular, an older woman even more."

It's even worse for people who start out homeless, like most of her clients, says Mellani. They can't afford doctor visits, so they can't document their diagnoses.

Applicants who have lawyers are much more successful in their attempts to get disability. "It's pathetic," Sarah says. In other "civilized" countries, "like South Africa, Australia, U.K. or Canada," she says, people do not have to wait to get benefits the way Americans do.

When applicants finally do get hearings, the majority are granted benefits. Why are so many rejected at first? No one can explain.

But everyone agrees the wait for hearings is way too long. "We recognize we have problems and the length of the wait is not acceptable," says Randy Crockett, district manager of the Portland downtown Social Security office.

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Daniel Bernath
Attorney at Law

"Don't Give Up!  I will fight for you"~Practice limited to obtaining SSA benefits for disabled people throughout the United States and federal administrative law  "Just give me a call...leave the rest to me."

     

"For the last 12 years Social Security has not gotten the funding it's requested," explains Joy Chang, regional communications director for Social Security. "It means we're over a billion dollars short over the last 10 years."

Today the agency is "at our lowest staffing levels since 1972 . . . and the number of people we serve has doubled."

Congress recently passed a budget with funds to hire more hearings judges and staff; it was vetoed by President Bush. A new bill is now being prepared.

Even if the agency gets adequate funding, "it still will take a while. Judges (and support staff) need to be trained," Joy says. It takes a year to train a new judge.

Until new judges are brought on board, more people will die waiting for benefits to which they are legitimately entitled. Mellani, and Sarah and Richard, will see clients die, waiting for hearings. "Such inhuman delays," Sarah says, "for such a very human dilemma."

Margie Boule: 503-221-8450; marboule@aol.com

 

****

 

The New York Times
 
December 10, 2007
 

Disability Cases Last Longer as Backlog Rises

By ERIK ECKHOLM
RALEIGH, N.C. — Steadily lengthening delays in the resolution of Social Security disability claims have left hundreds of thousands of people in a kind of purgatory, now waiting as long as three years for a decision.

Two-thirds of those who appeal an initial rejection eventually win their cases.

But in the meantime, more and more people have lost their homes, declared bankruptcy or even died while awaiting an appeals hearing, say lawyers representing claimants and officials of the Social Security Administration, which administers disability benefits for those judged unable to work or who face terminal illness.

The agency’s new plan to hire at least 150 new appeals judges to whittle down the backlog, which has soared to 755,000 from 311,000 in 2000, will require $100 million more than the president requested this year and still more in the future. The plan has been delayed by the standoff between Congress and the White House over domestic appropriations.

There are 1,025 judges currently at work, and the wait for an appeals hearing averages more than 500 days, compared with 258 in 2000. Without new hirings, federal officials predict even longer waits and more of the personal tragedies that can result from years of painful uncertainty.

Progress against the backlog, if it happens, cannot undo the three years that Belinda Virgil of Fayetteville, N.C., has worried about her future since her initial application was turned down.

Tethered to an oxygen tank 24 hours a day because of emphysema and life-threatening sleep apnea, Ms. Virgil lost her apartment and has alternated between a sofa in her daughter’s crowded house and a friend’s place as she waits for an answer to her appeal.

“It’s been hell,” said Ms. Virgil, 44, who finally got her hearing in November and is awaiting the outcome. “I’ve got no money for Christmas, I move from house to house, and I’m getting really depressed.”

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Daniel Bernath
Attorney at Law

"Don't Give Up!  I will fight for you"~Practice limited to obtaining SSA benefits for disabled people throughout the United States and federal administrative law  "Just give me a call...leave the rest to me."

     

The disability process is complex, and the standard for approval has, from the inception of the program in the 1950s, been intentionally strict to prevent malingering and drains on the treasury. But it is also inevitably subjective in some cases, like those involving mental illness or pain that cannot be tested.

In a standard tougher than those of most private plans, recipients must prove that because of physical or mental disabilities they are unable to do “any kind of substantial work” for at least 12 months — if an engineer could not do his job but could work as a clerk, he would not qualify — or prove that an illness is expected “to result in death.”

In a recent interview, the commissioner of Social Security, Michael J. Astrue, said that outright fraud was rare but that many cases on appeal were borderline. In addition, widely publicized charges in the 1970s that money had been wasted on recipients whose conditions improved led to tighter scrutiny.

Of the roughly 2.5 million disability applicants each year now, about two-thirds are turned down initially by state agencies, which make decisions with federal oversight based on paper records but no face-to-face interview. Most of those who are refused give up at that point or after a failed request for local reconsideration.

But of the more than 575,000 who go on to file appeals — putting them in the vast line for a hearing before a special federal judge — two-thirds eventually win a reversal.

Mr. Astrue and other officials attribute the high number of reversals to several causes. Those who file appeals tend to be those with stronger cases and lawyers who help them gather persuasive medical data. During the extended waiting period, a person’s condition may worsen, strengthening the case. The judges see applicants in person and have more discretion to grant benefits in borderline cases.

Requiring face-to-face interviews at the initial stage could reduce the number of appeals, Mr. Astrue said, “but given the huge volume of cases coming through, it would be incredibly costly, and the Congress is not willing to fund that.”

The growing delays in the appeal process over the last decade resulted in part from litigation and financing shortages that prevented the hiring of new administrative law judges. In addition, the number of applications is rising as baby boomers reach their 50s and 60s.

“Once the system got overloaded, it fell farther and farther behind,” said Rick Warsinsky, legislative director of the National Council of Social Security Management Associations, which represents managers from the agency.

If approved, those who have paid into Social Security receive income comparable to retirement benefits, averaging more than $1,000 a month and potentially more. The poor, and severely disabled children, receive Supplemental Security Income checks that will be $637 a month in 2008.

Charles T. Hall’s law firm in Raleigh has the state’s largest disability practice, with six lawyers representing some 2,500 clients, usually working on contingency and collecting 25 percent of back payments, to a limit of $5,300. Mr. Hall said that about one client a month died while awaiting a hearing. Far more clients, he said, run out of money and are evicted from rental units or lose their homes.

In the past, said Walter Patterson, a disability lawyer in Charlotte, N.C., clients who received a foreclosure warning were pushed up the waiting list for quicker hearings. But as the hearing offices have become overwhelmed, he said, they now expedite cases only after seeing an actual eviction notice — usually too late to help.

Thomas Airington, 48, who formerly ran a car-emissions testing business, was told his appeal, filed last spring, would be expedited when he showed officials an eviction notice. In the meantime he lost the house, which his parents had bequeathed him. A hearing date has still not been set.

“If I’d been approved in time, I could have saved my house,” said Mr. Airington, who is staying with a brother near Raleigh.

Mr. Airington has pins in his spine from a car accident in 1992, shattered a knee when he fell 30 feet in 2005, has nerve damage in his feet and chronic arthritis and depression. The rejection letter he is appealing said, “We have determined that the condition is not severe enough to preclude work.”

Mr. Airington said he tried a desk job but found he could not sit for long, and tried working as a stocker in a grocery store but could not reach for shelves. Whatever the outcome, he, like many applicants, is in limbo while he waits.

The extended delays can also mean extra burdens for state welfare agencies. In New York State, about half the 38,000 people now waiting on disability appeals, for an average of 21 months, are receiving cash assistance from the state, said Michael Hayes, spokesman for the Office of Temporary and Disability Assistance.

Mr. Astrue, the latest of several Social Security commissioners to promise speedier decisions, said the agency had already taken steps to ensure quicker initial approval for those most clearly eligible and was holding more hearings by video.

But by all accounts, a major increase in money, judges and support staff will be needed to have a significant impact.

Mr. Astrue said that if the budget impasse continued for too long, leaving the agency budget at its current level, “not only will we not do any hiring, we’re looking at furloughs.”

A first step of raising the number of judges to 1,200 will require at least $100 million extra for the agency beyond the $9.6 billion that President Bush has proposed for the 2008 fiscal year, Mr. Astrue said. Within a wide-ranging, $151 billion health, education and labor bill passed in November, the Democratic-controlled Congress voted for a $275 million increase for the agency. But Mr. Bush vetoed the bill, calling it profligate.

If the stalemate continues, the government will probably operate on the basis of continuing resolutions, which will keep agency spending at last year’s level and doom the plan to add judges.

Richard and Vicki Wild and their adult son Mark, of Hillsborough, N.C., were mystified that Mark’s case would ever require a judge.

Hospitalized with increasing frequency since his severe diabetes was discovered at age 19, when he was found unconscious in a bus station, Mark Wild was eager to work as a chef. But over 15 years, he tried and lost jobs as a waiter and a cook. He had to drop out of culinary school because he was hospitalized so often, his parents said.

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Daniel Bernath
Attorney at Law

"Don't Give Up!  I will fight for you"~Practice limited to obtaining SSA benefits for disabled people throughout the United States and federal administrative law  "Just give me a call...leave the rest to me."

     

“We had 10 years’ worth of hospital records and unanimous opinions from the doctors,” said Richard Wild, 62, who until recently was a computer analyst. But his son’s initial application was turned down in 2003.

The family had sunk into debt because of medical bills, nearly losing their house of 30 years, but found a lawyer to file an appeal. The son, by then in his mid-30s, had to wait two more years to get a hearing scheduled, with no income and little life outside his parents’ home and the hospital.

As his hearing date in October 2006 approached, Mark Wild told his parents that he feared another rejection. “It was his last chance at any dignity, and he said if they turned him down it would be too much to take,” recalled Mrs. Wild, a nurse.

On Tuesday, Oct. 17, 2006, just a few days before the hearing, Mrs. Wild woke up to find her son gone. On his desk lay his watch, his ring and a bullet.

On that Thursday, Mrs. Wild, 55, got a call at work from their lawyer. “I just wanted to give you the good news,” she said he told her. “Somehow the judge has already approved the disability, it’s a done deal, Mark’s got it.”

Two hours later, a deputy sheriff and a chaplain arrived to say that hunters had found Mark Wild’s body in the woods, dead of a self-inflicted gunshot wound.

“No one can say for sure, but we’re convinced that his despondency and fear about the disability decision contributed to his death,” said Mrs. Wild, who wears a pinch of her son’s ashes in a small tube on a necklace.

Mr. Wild has tried to go back to work, but says he is so depressed he cannot do his job. He is applying for disability, but knows that he cannot expect an answer anytime soon.

 

Sick of Waiting

AARP Bulletin

The number of claims for Social Security disability payments has doubled since 2001.
It can take years for a case to be reviewed.
Meanwhile, applicants struggle to survive.

 
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Daniel Bernath
Attorney at Law

"Don't Give Up!  I will fight for you"~Practice limited to obtaining SSA benefits for disabled people throughout the United States and federal administrative law  "Just give me a call...leave the rest to me."

Maria Leal of Portland, Ore., tells her story slowly because her tongue is sutured, making it difficult for her to speak clearly. She has grand mal seizures, and during the last one she bit down on her tongue so violently it needed stitches.

For 25 years, Leal, 53, was a dental assistant, but recently, even though she takes medication, her seizures began to interfere with her job. Too sick to work, she applied for Social Security disability insurance, which working Americans automatically pay for through payroll taxes and are entitled to collect if they become too ill or disabled to work.

But three years after she applied for disability benefits, Leal is living in a residence for the homeless, sharing a bathroom with 54 other women and eating baloney sandwiches. She's still waiting for her claim to be processed.

"I haven't worked since 2004, and I have no money," she says. "I've lost my apartment and my car. Just to finally get a hearing would be a precious gift."

Today the Social Security Administration (SSA) faces a record backlog of disability cases like Leal's, with 750,000 vulnerable people waiting—some for years—for a hearing and growing more desperate each day.

"People have died waiting for a hearing," Social Security Commissioner Michael Astrue concedes. "This is America, and it is simply not acceptable for Americans to wait years for a final decision on a claim."

Disability claims, officials say, have doubled since 2001 as millions of boomers in their 50s—the years when working men and women are most prone to illness and disabilities—have applied to collect the insurance. Despite a growing aging population and caseload, the agency hasn't been able to afford to add workers. Congress has consistently cut the SSA's budget requests since 2001, leaving the agency's overall staffing at its lowest level in 34 years.

Budget limitations, staff reductions and a growing list of new duties—from processing Medicare applications to a raft of homeland security rules governing issuance or replacement of Social Security cards—are taking a toll on Social Security offices across the country. In some offices calls go unanswered and people wait in long lines for service.

But the SSA's 51-year-old disability benefits program has the most pernicious delays, with people now waiting an average of 520 days for a hearing on a claim.

 

The wait in Atlanta, with one of the worst backlogs, averages about 900 days, almost three years. In Portland, where Leal lives, the wait is nearly two years, says Richard , an attorney there who has handled disability cases for 30 years.

"By the time you request a hearing," says , "you've already spent at least three to six months in the process, often a year. Then it's running another two years. I get angry just talking about this."

An estimated 8.7 million people are currently receiving disability benefits, with monthly payments for disabled workers averaging $979. This year 2.5 million people have applied for benefits, a figure expected to grow by 90,000 each year for the next five years.

Because disability cases can be complex and the medical and work records extensive, two out of three people who apply for benefits each year are initially rejected. On appeal, cases are heard by an administrative law judge trained to review these files, and more than 60 percent of those claims are approved.

At the hearing stage, about 50 percent of those making claims hire a lawyer to help them navigate the process. Legal fees are capped at $5,300 by federal law, and due only if and when the client collects disability payments.

Linda Fullerton of Rochester, N.Y., a former computer purchasing agent, fought for her benefits for more than two years after she developed a brain abscess that required surgery and led to a constellation of problems, from joint disease to chronic muscle pain. "I was finally approved," says the 51-year-old, "but by then I had lost all my pension money and run through my savings."

"You think once you get the disability money, you'll be OK," she adds. "But you never recover financially. I have no financial security."

Disability, Fullerton says, "is not a handout. This is insurance that we have paid for, and we just want to collect on the policy."

Fullerton was so incensed by her experience that she formed the Social Security Disability Coalition, a grassroots online group in which people who have been through the process try to help those struggling with it.

"This whole situation is tragic," said Sen. Max Baucus, D-Mont., chairman of the Senate Finance Committee, which has called for a $430 million increase in SSA's appropriation for 2008. But it's likely that Congress will approve an increase of only $120 million to $125 million.

With the smaller increase—which would be spread across the entire agency, including field offices—SSA would have "limited resources to use to drive down the hearings backlog," says Astrue, the SSA commissioner. SSA would be able to add no more than 150 of the 185 judges it needs, he says. Currently, 1,065 judges carry an average annual workload of 680 cases.

It takes more than a year, however, to train a hearings judge, Astrue says, "and we won't begin to see a real benefit until 2009."

Advocates say too many compelling disability cases are rejected out of hand, and SSA needs to design a better initial screening process as well as add more judges.

, the Portland disability attorney, says, "No one knows for certain why so many cases are denied, then later approved. I think they tend to reject claims if there are any questions or problems. They're trying to move these cases through the system, and if there's any problem, any question, they deny the claim and move on to the next one."

Astrue points out that one reason more cases are approved on appeal is because people just get sicker as they go through the lengthy disability process: "If this process is delayed, their impairments sometimes become more severe, resulting in a favorable decision," he told members of a congressional committee.

To improve the process, Astrue plans to draw up a list of diseases and conditions that should be allowed on diagnosis alone, such as acute leukemia. He wants to hold more hearings for people in remote areas through videoconferencing and to send judges temporarily to areas where the backlogs are the worst. But the changes will take time.

Even with adequate funding and his "aggressive plans" for streamlining the process, Astrue says, the hearings backlog will not be eliminated until 2013.

Meanwhile, Maria Leal's life is centered on a secondhand black plastic briefcase, where she keeps the medical records for her case.

"Two doctors certified me 100 percent disabled, but I was rejected twice," says Leal, who not only has seizures but also has been diagnosed with rheumatoid arthritis, fibromyalgia and pancreatitis.

Still self-conscious about her sutured tongue, Leal says carefully, "Can you understand what I'm saying? Please tell me, can you understand?"